This website is intended for patients and their carers

Resources and support

Resources and support
Being diagnosed with cholangiocarcinoma (CCA) can be overwhelming. That’s why it is important to have the right support and information
Resources
‘Understanding your cholangiocarcinoma’ booklet Thumbnail

‘Understanding your cholangiocarcinoma’ booklet

This booklet helps to answer some of the questions you may have about cholangiocarcinoma.
Download resource
‘Living with cholangiocarcinoma: Managing your nutrition needs’ booklet Thumbnail

‘Living with cholangiocarcinoma: Managing your nutrition needs’ booklet

This booklet helps to support the nutritional and dietary needs of those who have recently been diagnosed with cholangiocarcinoma.
Download resource
‘Molecular testing in cholangiocarcinoma’ booklet Thumbnail

‘Molecular testing in cholangiocarcinoma’ booklet

This booklet explains why and how molecular testing is performed and the role it may play in guiding treatment decisions. Example questions you may wish to ask your treatment team about molecular testing are also included.
Download resource
Plain language summary of Incyte’s cholangiocarcinoma (CCA) meeting at the 2022 European Society for Medical Oncology World Congress on Gastrointestinal Cancer (ESMO-GI)
In this video, highlights from Incyte’s ESMO-GI 2022 meeting, titled ‘CCA: It’s time for personalised medicine’ are discussed with focus on the needs of a patient audience. In this discussion chaired by Helen Morement (AMMF – The Cholangiocarcinoma Charity, London, UK), Professor John Bridgewater (Clinical Professor, University College London Cancer Institute, London, UK) and Professor Lorenza Rimassa (Associate Professor of Medical Oncology, Humanitas University and IRCCS Humanitas Research Hospital, Milan, Italy) share their expert perspectives on CCA. Key topics include overcoming diagnostic challenges, optimising molecular profiling and discussing personalised medicine for patients with CCA.
Helen Morement
Helen Morement
CEO and Founder of AMMF - The Cholangiocarcinoma Charity, London, UK
Professor Lorenza Rimassa
Professor Lorenza Rimassa
Associate Professor of Medical Oncology, Humanitas University and IRCCS Humanitas Research Hospital, Milan, Italy
Professor John Bridgewater
Professor John Bridgewater
Clinical Professor, University College London Cancer Institute, London, UK

These organisations help support CCA awareness, advocacy and research:

AMMF is a registered charity based in the UK,
working nationally and internationally,
dedicated solely to CCA. AMMF’s website
includes a wealth of information and resources
for patients and their carers
Biliary Tract Cancer: An ESMO Guide for Patients
This guide has been prepared to help
patients or caregivers better understand
biliary tract cancer and the treatments that
are available
A cancer research and awareness charity
providing support and information for all
cancer types
Macmillan Cancer Support https://www.macmillan.org.uk
A cancer support charity providing
specialist health care, information
and financial support to people
affected by cancer and their relatives
Learn more about the terms used in this website