Events and resources

Disclosures

Professor Jesús Bañales:

Company/Organisation	Relationship(s)
Albireo Pharma, CIMABay, Ikan Biotech, OWL Metabolomics, QED Therapeutics	Consulting/advisory role
Incyte, Intercept	Honoraria/lectures
Albireo, Incyte, Roche	Research funding

Patient website

The cholangiocarcinoma (CCA) patient website supports patients and their carers/loved ones seeking information on an array of CCA-related topics, including disease background, symptoms, diagnosis and management. Additional useful resources/links for patients are also provided.

View resource

Listen to Dr Teresa Macarulla (Gastrointestinal Oncologist) describe the CCA patient website.

Dr Teresa Macarulla

Vall d’Hebron University Hospital,
Barcelona, Spain

Disclosures: Dr Teresa Macarulla

Company/Organisation	Relationship(s)
Ability Pharmaceuticals SL, Aptitude Health, AstraZeneca, Basilea Pharma, Baxter, BioLineRX Ltd, Celgene, Eisai, Ellipses, Genzyme, Got It Consulting SL, Hirslanden/GITZ, Imedex, Incyte, Ipsen Bioscience Inc, Janssen, Lilly, Marketing Farmacéutico & Investigación Clínica S.L, MDS, Medscape, Novocure, Paraxel, Polaris, PPD Development, QED Therapeutics, Roche Farma, Sanofi-Aventis, Scilink Comunicación Científica SC, Servier, Surface Oncology, Swedish Orphan Biovitrum AB, Zymeworks	Advisory role Speaker’s fee Direct research fund
AbbVie Farmaceútica, Ability Pharmaceuticals, Agios Pharmaceuticals, Amc Medical Research, Amgen, Armo Biosciences, Aslan Pharmaceuticals, Astrazeneca, Basilea Pharmaceutica International, Bayer, Beigene, Biokeralty Research Institute, Biolinerx, Blueprint Medicines, Boston Biomedical, Bristol-Myers Squibb (BMS), Cantargia, Celgene, Eisai, Erytech Pharma, F. Hoffmann-la Roche, Fibrogen, Halozyme, Incyte, Ipsen Bioscience, Ipsen Pharma, Lilly, Loxo Oncology, Medimmune, Merck Sharp & Dohme, Nelum, Novartis, Novocure, Oncomed Pharmaceuticals, QED Therapeutics, VCN Biosciences, Zymeworks	Clinical trial support

Company/Organisation

Relationship(s)

Ability Pharmaceuticals SL, Aptitude Health, AstraZeneca, Basilea Pharma, Baxter, BioLineRX Ltd, Celgene, Eisai, Ellipses, Genzyme, Got It Consulting SL, Hirslanden/GITZ, Imedex, Incyte, Ipsen Bioscience Inc, Janssen, Lilly, Marketing Farmacéutico & Investigación Clínica S.L, MDS, Medscape, Novocure, Paraxel, Polaris, PPD Development, QED Therapeutics, Roche Farma, Sanofi-Aventis, Scilink Comunicación Científica SC, Servier, Surface Oncology, Swedish Orphan Biovitrum AB, Zymeworks

Advisory role
Speaker’s fee
Direct research fund

AbbVie Farmaceútica, Ability Pharmaceuticals, Agios Pharmaceuticals, Amc Medical Research, Amgen, Armo Biosciences, Aslan Pharmaceuticals, Astrazeneca, Basilea Pharmaceutica International, Bayer, Beigene, Biokeralty Research Institute, Biolinerx, Blueprint Medicines, Boston Biomedical, Bristol-Myers Squibb (BMS), Cantargia, Celgene, Eisai, Erytech Pharma, F. Hoffmann-la Roche, Fibrogen, Halozyme, Incyte, Ipsen Bioscience, Ipsen Pharma, Lilly, Loxo Oncology, Medimmune, Merck Sharp & Dohme, Nelum, Novartis, Novocure, Oncomed Pharmaceuticals, QED Therapeutics, VCN Biosciences, Zymeworks

Clinical trial support

‘Understanding your cholangiocarcinoma’ booklet

Patients diagnosed with cholangiocarcinoma (CCA) are likely to have many questions. This booklet supports patients by answering questions they may have regarding CCA, its diagnosis and management, and molecular profiling.

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Listen to Helen Morement (CEO and Founder of AMMF – The Cholangiocarcinoma Charity) describe the ‘Understanding your cholangiocarcinoma’ booklet.

Helen Morement

CEO and Founder of AMMF - The Cholangiocarcinoma Charity, London, UK

Disclosures: Helen Morement

Company/Organisation	Relationship(s)
Incyte	Speaker

‘Living with cholangiocarcinoma: Managing your nutrition needs’ booklet

A poor nutritional status can negatively impact patient outcomes, including altered health-related quality of life, decreased survival and increased risk of complications.¹ This booklet helps to support the nutritional and dietary needs of patients who have recently been diagnosed with cholangiocarcinoma.

REFERENCE: 1. Neuzillet C, et al. BMJ Support Palliat Care. 2021;11:381–95.

Download resource

Listen to Glenda O’Connor (Lead Dietician) describe the ‘Living with cholangiocarcinoma: managing your nutrition needs’ booklet.

Glenda O’Connor

Lead Dietician,
The Princess Grace Hospital,
London, UK

Disclosures: Glenda O’Connor

Company/Organisation	Relationship(s)
Dietician, no disclosures reported.

‘Molecular testing in cholangiocarcinoma’ booklet

Genomic analysis of patients with cholangiocarcinoma has revealed genomic alterations with potential therapeutic implications in ~50% of patients.¹ This booklet helps patients to understand why and how molecular testing is performed and the role it may play in guiding treatment decisions. Example questions about molecular testing are included to prompt patients to think of questions that they may wish to ask their treatment team.

REFERENCE: 1. Lowery MA, et al. Clin Cancer Res. 2018;24:4154–61.

Download resource

Listen to Helen Morement (CEO and Founder of AMMF – The Cholangiocarcinoma Charity) describe the ‘Molecular testing in cholangiocarcinoma’ booklet.

Helen Morement

CEO and Founder of AMMF - The Cholangiocarcinoma Charity, London, UK

Disclosures: Helen Morement

Company/Organisation	Relationship(s)
Incyte	Speaker

AMMF resources

AMMF – The Cholangiocarcinoma Charity – works across Europe and actively collaborates globally. The AMMF European cholangiocarcinoma (CCA) website, available in 9 languages, supports patients and their carers/loved ones seeking information on all aspects of CCA across Europe; it also helps healthcare practitioners, including clinical nurse specialists, to navigate information available for their patients with CCA.

View resource

Listen to Helen Morement (CEO and Founder of AMMF – The Cholangiocarcinoma Charity) describe the AMMF resources available.

Helen Morement

CEO and Founder of AMMF - The Cholangiocarcinoma Charity, London, UK

Disclosures: Helen Morement

Company/Organisation	Relationship(s)
Incyte	Speaker

Events and resources

Patient resources

Click on a patient resource to learn more

Clinical advances in the treatment of CCA

Key publications

Biliary tract cancer: ESMO Clinical Practice Guideline for diagnosis, treatment and follow-up

Cholangiocarcinoma 2020: The next horizon in mechanisms and management

Management of intrahepatic cholangiocarcinoma

Promising molecular targets for the targeted therapy of biliary tract cancers: An overview

Practical considerations in screening for genetic alterations in cholangiocarcinoma

Biliary tract cancer

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