Expert perspectives on cholangiocarcinoma (CCA)

I see CCA today (2022)

World CCA Day (12 February 2022), organised by the Global CCA Alliance, is an international effort to raise awareness of CCA. The purpose of Rare Disease Day (28 February 2022) is to raise awareness and generate change for the 300 million people worldwide living with a rare disease.¹ To support these initiatives, we asked a patient with CCA and a multidisciplinary panel of CCA experts to express how they #SeeCCA today.

Reference: 1. Nguengang Wakap S, et al. Eur J Hum Genet. 2020;28:165–73.

Helen Morement

CEO and Founder of AMMF - The Cholangiocarcinoma Charity, London, UK

Phil Preston

Patient,
UK

Dr Angela Lamarca

Fundación Jiménez Díaz University Hospital, Spain

Dr Joachim Mertens

University Hospital Zürich,
Zürich, Switzerland

Professor Juan Valle

The Christie NHS Foundation Trust and
University of Manchester, UK

Professor Thomas Gruenberger

Sigmund Freud University,
Vienna, Austria

Professor Bruno Sangro

Director, Liver Unit & Co-Director, HPB Oncology Area, Clinica Universidad de Navarra, Pamplona, Spain

Dr Teresa Macarulla

Vall d’Hebron University Hospital,
Barcelona, Spain

Dr Ana Vivancos

Vall d’Hebron Institute of Oncology,
Barcelona, Spain

Glenda O’Connor

The Wellington Hospital,
London, UK

CCA: under the spotlight (2021)

This online webinar took place on 26 February 2021 and was hosted by our esteemed faculty who critically discussed the complexity of diagnosing CCA and the clinical and genetic heterogeneity associated with the disease

Dr Teresa Macarulla

Vall d’Hebron University Hospital,
Barcelona, Spain

Dr Joachim Mertens

University Hospital Zürich,
Zürich, Switzerland

Dr Angela Lamarca

Fundación Jiménez Díaz University Hospital, Spain

Dr Coralie Sayag

Former Medical Director Solid Tumours,
Region Europe, Incyte Biosciences International Sàrl (01 May 2020 – 31 May 2022)

Company/Organisation	Relationship(s)
Albireo Pharma, AstraZeneca, Boston Scientific, EISAI, Ipsen, QED, Nutricia, Roche, Servier	Consulting honoraria
AAA pharmaceuticals, AstraZeneca, EISAI, Incyte, Ipsen, QED, Merck, Pfizer, Servier	Speaker honoraria
AAA pharmaceutical, Bayer, Delcath Systems, Ipsen, Mylan, Novartis, Pfizer, Sirtex Medical	Travel, education funding

Company/Organisation	Relationship(s)
Imaging Equipment Ltd, Ipsen, Novartis, NuCana	Speakers bureau
Celgene, NuCana	Travel Grant
Agios, AstraZeneca, Debiopharm, Delcath Systems, GenoScience Pharma, Imaging Equipment Ltd, Incyte, Ipsen, Keocyt, Merck, Mundipharma EDO, Novartis, NuCana, PCI Biotech, Pieris Pharmaceuticals, Pfizer, QED, Servier, Wren Laboratories	Grant support

Company/Organisation	Relationship(s)
Adaptimmune, AstraZeneca, Bayer, Bristol Myers Squibb, Boston Scientific, Eisai, Exelixis, Ipsen, Lilly, Merck, Novartis, Roche, Sirtex Medical, Terumo	Consulting, advisory role or honoraria
Bristol Myers Squibb, Sirtex Medical	Grants

Company/Organisation	Relationship(s)
Personal financial interests:
Ability Pharmaceuticals SL, Aptitude Health, AstraZeneca, Basilea Pharma, Baxter, BioLineRX Ltd, Celgene, Eisai, Ellipses, Genzyme, Got It Consulting SL, Hirslanden/GITZ, Imedex, Incyte, Ipsen Bioscience, Inc, Janssen, Lilly, Marketing Farmacéutico & Investigación Clínica, S.L, MDS, Medscape, Novocure, Paraxel, PPD Development, Polaris, QED Therapeutics, Roche Farma, Sanofi-Aventis, Servier, Scilink Comunicación Científica SC, Surface Oncology, Swedish Orpahn Biovitrum AB, Zymeworks	Advisory role Speaker’s fee Direct research fund
Institutional financial interests:
AbbVie Farmaceútica, Ability Pharmaceuticals, Agios Pharmaceuticals, Amc Medical Research, Amgen, Armo Biosciences, Aslan Pharmaceuticals, Astrazeneca, Basilea Pharmaceutica International, Bayer, Beigene, Biokeralty Research Institute, Biolinerx, Blueprint Medicines, Boston Biomedical, Bristol-Myers Squibb (BMS), Cantargia, Celgene, Eisai, Erytech Pharma, F. Hoffmann-la Roche, Fibrogen, Halozyme, Incyte, Ipsen Bioscience, Ipsen Pharma, Lilly, Loxo Oncology, Medimmune, Merck Sharp & Dohme, Nelum, Novartis, Novocure, Oncomed Pharmaceuticals, QED Therapeutics, VCN Biosciences, Zymeworks	Clinical trial support

Company/Organisation	Relationship(s)
Bayer, Bristol Myers Squibb, Guardant Health, Incyte, Merck, Novartis, Roche	Advisory board
Sysmex	Consultant

Expert perspectives on cholangiocarcinoma (CCA)

I see CCA today (2022)

CCA: under the spotlight (2021)

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I see CCA today (2022)

CCA: under the spotlight (2021)

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